Reliable Agencies and Organizations
This page lists organizations that have produced reliable publications for many years. We have not yet reviewed all of their Web sites to see how much of their content is useful to consumers. To nominate additional entries for this page, please contact Dr. Stephen Barrett
Federal Government Agencies
- Agency for Health Care Research and Quality (AHRQ)
- Centers for Disease Control and Prevention (CDC)
- Center for Food Safety and Applied Nutrition (CFSAN)
- Consumer Product Safety Commission (CPSC)
- Department of Health and Human Services (DHHS)
- Environmental Protection Agency (EPA)
- Food and Drug Administration (FDA)
- Federal Consumer Information Center (FCIC)
- Federal Trade Commission (FTC)
- Health Care Financing Administration (HCFA)
- National Cholesterol Education Program (NCEP)
- National Clearinghouse on Child Abuse and Neglect (NCCAN)
- National Guideline Clearinghouse (NGC)
- National Health Information Center (NHIC)
- National Institutes of Health (NIH)
- National Cancer Institute (NCI)
- National Eye Institute (NEI)
- National Human Genome Research Institute (NHGRI)
- National Heart, Lung, and Blood Institute (NHLBI)
- National Institute of Allergy and Infectious Diseases (NIAID)
- National Institute of Arthritis and Musculoskeletal and Skin Diseases (NIACD)
- National Institute of Child Health and Human Development (NICHD
- National Institute of Dental and Craniofacial Research (NIDCR)
- National Institute of Diabetes and Digestive and Kidney Diseases (NIDDK)
- National Institute of Environmental Health Sciences (NIEHS)
- National Institute on Deafness and Other Communication Disorders (NIDCD)
- National Institute of General Medical Sciences (NIGMS)
- National Institute of Mental Health (NIMH)
- National Institute of Neurological Disorders and Stroke (NINDS)
- National Institute of Nursing Research (NINR)
- National Institute on Aging (NIA)
- National Institute on Alcohol Abuse and Alcoholism (NIAAA)
- National Institute on Drug Abuse (NIDA)
- National Library of Medicine (NLM)
- Office of Dietary Supplements (ODS)
- National Maternal and Child Health Clearinghouse (NMCHC)
- National Prevention Information Network (NPIN)
- National SIDS Resource Center (NSRC)
- Office of Disease Prevention and Health Promotion (ODPHP)
- Office of the Inspector General (OIG)
- President's Council on Physical Fitness and Sports (PCPFS)
- Substance Abuse and Mental Health Services Administration (SAMSHA)
- Tobacco Information and Prevention Source (TIPS)
- U.S. Department of Agriculture (USDA)
- U.S. Postal Service (USPS)
Nongovernmental Organizations
Most of the organizations listed below are voluntary groups that draw support and members from the general public as well as professionals. Some have a single national office, while others have chapters in various cities. Most of these organizations provide educational materials on request. Some raise and distribute funds for research. Some conduct educational programs for the public and encourage and develop local support groups. Some offer individual counseling.
Business and professional groups, indicated by an asterisk (*) are composed exclusively or primarily of health professionals or other professionally trained individuals. Most of these groups publish a scientific journal and hold educational meetings for their members. Most of them also help the public by setting professional standards, disseminating information through the news media, and responding to inquiries from individual consumers.
Additional information on most of these organizations can be obtained from the Encyclopedia of Medical Organizations and Agencies (Gale Research Company, Detroit), available in the reference department of most public libraries.
- AcademyHealth
- Action on Smoking and Health (nonsmokers' rights)
- Aerobics and Fitness Association of America
- Alan Guttmacher Institute (birth control, family planning, and women's health issues)
- Alexander Graham Bell Association for the Deaf
- Alzheimer's Association
- *American Academy of Allergy, Asthma, and Immunology
- *American Academy of Child & Adolescent Psychiatry
- *American Academy of Family Physicians
- *American Academy of Ophthalmology
- *American Academy of Otolaryngology-Head and Neck Surgery
- *American Academy of Pediatrics
- American Academy of Physician Assistants
- American Alliance for Health, Physical Education, Recreation and Dance
- *American Association for Health Education
- *American Association for the History of Medicine
- *American Association for Marriage and Family Therapy
- *American Association of Blood Banks
- *American Association of Endodontists
- American Association of Homes and Services for the Aging
- American Association of Kidney Patients
- *American Association of Orthodontists
- *American Association of Pastoral Counselors
- *American Association of Plastic Surgeons
- American Association of Retired Persons
- *American Association of Sex Educators, Counselors, and Therapists
- *American Association of Suicidology
- American Association on Mental Retardation
- *American Board of Medical Specialties
- *American Burn Association
- American Cancer Society
- *American Cleft Palate-Craniofacial Association
- *American College Health Association
- *American College of Cardiology
- *American Counseling Association
- *American Society of Clinical Oncology
- *American College of Gastroenterology
- *American College of Health Care Administrators (nursing homes)
- *American College of Healthcare Executives
- *American College of Obstetricians and Gynecologists
- *American College of Physicians—American Society of Internal Medicine
- *American College of Radiology
- *American College of Rheumatology
- *American College of Sports Medicine
- *American College of Surgeons
- American Council on Science and Health
- *American Dental Association
- American Diabetes Association
- *American Dietetic Association
- *American Epilepsy Society
- American Federation of HomeCare Providers
- American Foundation for AIDS Research
- American Foundation for the Blind
- *American Geriatrics Society
- American Group Psychotherapy Association
- *American Headache Society
- *American Health Care Association (nursing home standards)
- American Heart Association
- *American Hospital Association
- *American Industrial Hygiene Association
- American Kidney Fund
- American Liver Foundation
- American Lung Association
- *American Medical Association
- *American Medical Women's Association
- American Mental Health Counselors Association
- *American Nurses Association
- *American Occupational Therapy Association
- *American Optometric Association
- American Pain Foundation
- *American Physical Therapy Association
- *American Podiatric Medical Association
- *American Psychiatric Association
- *American Psychoanalytic Association
- *American Psychological Association
- *American Public Health Association
- American Red Cross
- American Running Association
- *American School Health Association
- American SIDS Institute
*American Sleep Disorders Association - American Social Health Association (venereal disease)
- *American Society for Clinical Nutrition
- *American Society for Laser Medicine and Surgery
- *American Society for Nutritional Sciences
- *American Society for Surgery of the Hand
- *American Society of Clinical Hypnosis
- *American Society of Clinical Oncology
- *American Society of Hematology
- *American Society of Law, Medicine, and Ethics
- *American Society of Plastic Surgeons
- *American Society of Reproductive Medicine
- *American Speech-Language-Hearing Association
- American Tinnitus Association
- *American Urological Association
- *American Veterinary Medical Association
- Americans for Medical Progress (harm caused by "animal rights" groups)
- Americans for Nonsmokers' Rights
- Amyotrophic Lateral Sclerosis Association
- Anxiety Disorders Association of America
- Aplastic Anemia and MDS International Foundation
- The Arc of the United States (mental retardation)
- Arthritis Foundation (avoid information on "complementary" and "alternative" methods)
- *Association for Ambulatory Behavioral Healthcare
- *Association for the Advancement of Behavior Therapy
- Association for Macular Diseases
- Asthma and Allergy Foundation of America
Attention Deficit Disorder Association - *Better Hearing Institute
- *BlueCross BlueShield Association
- Cancer Care
- Candlelighters Childhood Cancer Foundation
- Center for Evidence-Based Medicine
- Center for the Study of Services
- Children and Adults with Attention Deficit/Hyperactivity Disorder
- Children of Aging Parents
- Children's Health Care Is a Legal Duty (CHILD)
- Children's Leukemia Research Association
- Committee for the Scientific Investigation of Claims of the Paranormal (CSICOP)
- Compassionate Friends
- Consumers Union
- Cooley's Anemia Foundation
- *Council for Agricultural Science and Technology (CAST)
- *Council of Better Business Bureaus
- Crohn's and Colitis Foundation of America
- Cystic Fibrosis Foundation
- *Delta Dental Plans Association (dental insurance)
- Depression and Bipolar Support Alliance
- Drug Policy Alliance
- Dysautonomia Foundation
- Dystonia Medical Research Foundation
- Easter Seals National Headquarters
- *ECRI (medical devices, technology, and patient safety)
- Endometriosis Association
- EngenderHealth (women's health issues)
- Epilepsy Foundation
- Euthanasia Research and Guidance Organization
- Eye Bank Association of America
- False Memory Syndrome Foundation
- *Federated Ambulatory Surgery Association
- *Federation of Societies for Experimental Biology
- *Food and Nutrition Board, National Academies
- Foundation Fighting Blindness
Funeral Consumers Alliance - *Gerontological Society of America
- Glaucoma Research Foundation
- *Health Insurance Association of America
- Huntington's Disease Society of America
- *Institute of Food Technologists
- Institute of Medicine
- International AIDS Vaccine Initiative
- International Association for Medical Assistance to Travelers (IAMAT)
- International Association of Laryngectomees
- International Center for Toxicology and Medicine
International Cultic Studies Association (ICSA)
International Dyslexia Association - International Food Information Council Foundation
- *International Hearing Society
- *International Life Sciences Institute (nutrition, toxicology, technology risk assessment)
- Interstitial Cystitis Association
- James Randi Educational Foundation (investigation of paranormal claims)
- *Joint Commission on Accreditation of Healthcare Organizations
- Joslin Diabetes Center
- Juvenile Diabetes Foundation
- La Leche League International (breastfeeding)
- Leukemia & Lymphoma Society
- Little People of America
- Living Bank (organ donor registry)
- Lupus Foundation of America
- Lyomyosarcoma Information
- March of Dimes Birth Defects Foundation
- Maternity Center Association
- Medic Alert Foundation International (emergency medical information services)
- Melanoma International Foundation
- Mesothelioma Cancer Center
- Muscular Dystrophy Association
- Museum of Questionable Medical Devices
- Myasthenia Gravis Foundation
- *NAADAC, the Association for Addiction Professionals
National Academy Press - National Alliance of Breast Cancer Organizations
- National Alliance on Mental Illness
- National Association for Continence
- *National Association for Home Care and Hospice
- National Association of Anorexia Nervosa and Associated Disorders
- National Association of Area Agencies on Aging
- National Association of Attorneys General
- National Association of the Deaf
- *National Association of Social Workers
- National Ataxia Foundation (loss of muscle coordination and balance)
- National Breast Cancer Coalition
National Center for Fluoridation - National Center for Nutrition and Dietetics
- National Chronic Fatigue Syndrome and Fibromyalgia Association
- National Committee for Quality Assurance
- National Consumers League
- National Council Against Health Fraud
- National Council on the Aging
- National Council on Patient Information and Education
- *National Dairy Council
- National Down Syndrome Congress
- National Family Caregivers Association
- National Family Planning and Reproductive Health Association
- National Federation of the Blind
- National Foundation for Infectious Diseases
- National Fraud Information Center
- *National Funeral Directors Association
- National Headache Foundation
- *National Health Council
- National Hemophilia Foundation
- *National Hospice and Palliative Care Organization
- National Kidney Foundation
- National Marfan Foundation
- National Mental Health Association
- National Multiple Sclerosis Society
- National Neurofibromatosis Foundation
- National Organization for Rare Disorders (NORD)
- National Organization on Disability
- National Osteoporosis Foundation
- *National Parkinson Foundation
- National Psoriasis Foundation
- National Safety Council
- National Scoliosis Foundation
- National Spasmatic Torticollis Association
- National Spinal Cord Injury Association
- National Stroke Association
- National Tay-Sachs and Allied Diseases Association
- Obsessive Compulsive Foundation
- Oncolink (cancer database)
- Oral Cancer Foundation
- Oregon Fibromyalgia Foundation
- Osteogenesis Imperfecta Foundation
- Paget Foundation for Paget's Disease of Bone and Related Disorders
- Pancreatica.org
- Parkinson's Disease Foundation
- Partnership for Responsible Drug Information (drug abuse)
- Planned Parenthood—World Population
- Prevent Blindness America
- Prevent Child Abuse America
- Public Citizen Health Research Group
- Quackwatch
- Resolve (infertility)
- Scleroderma Foundation
- Sickle Cell Disease Association of America
- Sjogren's Syndrome Foundation
- Skeptics Society
- *Society for Clinical and Experimental Hypnosis
- *Society for Public Health Education
- Spina Bifida Association of America
- Sudden Infant Death Syndrome Alliance
- Tourette Syndrome Association
- Tuberous Sclerosis Alliance
- United Cerebral Palsy Associations
- United Network for Organ Sharing (UNOS)
- United Ostomy Association
- *United States Pharmacopeial Convention, Inc. (drug publications)
This page was revised on January 15, 2009.